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  • HOME
    • About
  • RESOURCE @ YOUR FINGERTIPS
    • NEURO-INFOMATION >
      • MEDICAL MODELS OF DISABILITY >
        • MEDICAL MODEL VS SOCIAL MODEL
        • AUTISM >
          • AUTISM 1
          • AUTISM II
          • AUTISTIC REPRESENTATION IN FILMS
          • HEAR FROM AUTISTICS
          • Childhood Disintegrative Disorder
        • RETT SYNDROME
        • ADHD >
          • ADHD I
          • ADHD II
        • ANGELMAN SYNDROME
      • UNDERSTANDING NEUROLOGY >
        • Neurology & Learning >
          • Co-Ocurring Challenges in learning
          • Visual Processing
          • Auditory Processing
        • SPECIFIC LEARNING DIFFICULTIES >
          • WHAT IS LD?
          • LD - READING >
            • HOW DOES IT AFFECT READING
            • DYSLEXIA - under revamp
            • Language Programs
          • LD - MATH >
            • HOW DOES IT AFFECT MATH
            • IDEAS FOR Nursery to Primary
          • STRATEGIES THAT SUPPORT LEARNING
        • MOTOR SKILLS & DEVELOPMENT >
          • All About Motor Development
        • SENSORY >
          • ALL ABOUT SPD - The 8 SENSES
          • ALL ABOUT SPD II
        • SOCIAL DEVELOPMENTAL SKILLS >
          • RDI - SOCIAL, COMMUNICATION & INTERACTION
          • Communication
        • Co-Occuring Challenges >
          • SELECTIVE MUTISM
          • EYE CONTACT
          • Toileting
        • OTHER UNIQUE ABILITIES / CHALLENGES
        • COPING STRATEGIES >
          • Anxiety Management
      • FOR PARENTS >
        • Preparing for Diagnosis Or Assessments - under revamp
        • PARENTING RESOURCES
      • HEAR FROM US - @SBSK
    • LEARNING RESOURCES >
      • LEARNING RESOURCES-PAGE >
        • LR - EARLY LEARNING YEARS
        • LR - SCIENCE >
          • LR- SCIENCE SEC 1
          • LR- SCIENCE SEC 2
          • LR - SCIENCE SEC 3
        • LR - HISTORY >
          • LR - HISTORY SEC 1
          • LR HISTORY SEC 2
          • LR HISTORY SEC 3
        • LR - GEOGRAPHY >
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ANGELMAN SYNDROME


Some Resources for Angelman Syndrome

MAIN INFO:
https://rarediseases.org/rare-diseases/angelman-syndrome/

COMMUNICATION
https://www.assistiveware.com/blog/join-angelman-revolution

SIBLINGSHIP:
https://www.youtube.com/watch?v=y1dIlCd9cQ8


EPILEPSY IN ANGELMAN
https://www.epilepsy.com/learn/epilepsy-due-specific-causes/angelman-syndrome
​​


AngelmanUK is a United Kingdom-based support group. The trustees are all volunteers with direct experience of Angelman Syndrome either as parents or relatives of children or adults with AS 
https://www.angelmanuk.org/support/communication/

Look into the Support Link that looks like the picture on the right -  in the webpage to retrieve the following information.
Picture
Innovative research uncovers mechanism behind epilepsy in Angelman syndrome, may lead to future therapies - 
​https://www.duke-nus.edu.sg/about/media/media-releases/media-releases/innovative-research-uncovers-mechanism-behind-epilepsy-in-angelman-syndrome

​

The UK based Angelman Syndrome Support, Education & Research Trust (ASSERT) is creating a series of films to help explain what Angelman Syndrome is, how it occurs and how it effects daily life. This film is the sixth in the series, we hope it helps raise awareness, supports families effected by Angelman Syndrome and also helps all people who wish to learn more about AAC.

Communication Part One offers an overview of what it might be like to communicate with somebody that has Angelman Syndrome. It briefly covers the various types of communication methods such as PODD books or Proloquo2go. Families give an insight into their experiences and Professionals advise on what to expect moving forward. The film highlights that individuals communicate in various ways and at different levels of interaction.

Alternative and Augmentative Communication is a very important part of life with Angelman Syndrome. This film, 'Starting AAC', offers an introduction on how to begin using AAC to communicate with somebody that has Angelman Syndrome. It looks into what kind of language should be used and what you might expect to find at the beginning. The professionals in this film offer their knowledge and tips to help prepare families and carers ready for starting to use AAC.

JOURNAL - REVIEWS

Epilepsy in Angelman syndrome - 
https://www.seizure-journal.com/article/S1059-1311(07)00187-2/fulltext

Quantitative Measurement of Communication Ability in Children with Angelman Syndrome - 
https://onlinelibrary.wiley.com/doi/full/10.1111/jar.12305


​

OTHER RESOURCES

  • https://angelmansyndromenews.com/

  • https://angelmansyndromenews.com/category/raising-an-angel-a-column-by-mary-kay/
 
  • https://angelmansyndromenews.com/category/a-rare-mind-a-column-by-terry-jo-bichell/
 
  • ​ANGELMAN SYNDROME FOUNDATION​ - https://www.angelman.org/
 
  • CANADIAN ANGELMAN SYNDROME SOCIETY​ - https://www.angelmancanada.org/
Please DO NOT print out for DISTRIBUTION/ SALE or infringe copyrights. These are only used to share knowledge purposes. ​

This resource site includes inclusive services for all types of professionals. The reviews are from parents who shared their positive experiences with them. Do note that every individual is unique, and not every service provider is one size fits all. Negative feedback will not be displayed but do contact us if you feel that there are concerns, and we will decide to review for removal on a case-by-case basis. If you have come across any inclusive services that could benefit another family do contact us to place their services for other parents to find. Thank you people :D

​
Facebook Advocacy: 
(Updated events and sharings will be also available at 
​
www.facebook.com/ANeurodiversityRoadOfLoveSg/

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